celebrities with bicuspid aortic valve

Monica Lewinsky: 25 Randoms on the 25th Anniversary of the Bill Clinton Calamity. I love running. If 5% of them dissect, this means 313,914 people. I ran competively for a division 1 NCAA university through college and have maintained a high level of physical fitness since. The confusing thing I hear is some cardiologists telling BAV people not to life over x lbs. On Ocotber 23, 2020, we learned that Arnold Schwarzenegger had a third heart valve procedure, a re-replacement of his aortic valve replacement. I had a good childhood being very active in sports and physical activity, I had just had to watch out for contact due to warfarin. View HelpingHeartsCharitys profile on Facebook, View @HelpingHeartsMDs profile on Twitter, View HelpingHeartsCharityMDs profile on Instagram. Its a lot harder in the UK to see your cardiologist so you cant get the answers quickly. I got checked out by my GP who detected a murmur then had all the other heart related tests and was diagnosed with BAV with stenosis and regurgitation. Although bicuspid aortic valve is typically asymp tomatic at fi rst, it is commonly associ-ated with progressive valvulopathy and tho-racic aortic disease. after surgery and was playing football again by September. Operation is needed if there is severe aortic valve stenosis, severe valve regurgitation, or significant enlargement of the aorta. The best source of recommendations about safety of various forms of exercise will come from your doctor(s) who are familiar with all the particulars of your circumstance. Susp. Although we still dont have very long term results tracked (15+ years), in the short term the results seem to be much superior to regular bentall de bono option (and its variations). Also suggested taking low dose of beta-blockers although I have been told the effectiveness has not been proven. I understand that we are only beginning to learn about the use of ARBs in patients who DO NOT have connective tissue disorders like Marfans syndrome. No aneurysm. 24 HOUR GYM Benefits: long-term durability. To list down the names of celebrities including entertainers, musicians, politicians, TV personalities, sports figures, etc. She partnered with the American Heart Association to encourage others to get CPR training that could potentially be life-saving. I have some issues with a dull pain right below my left breast that seems to come more often with a poor dietbut just doesnt seem like it could me esophagus related? Also, my next appointment is, unfortunately the week after my next marathon (which I will be pacing and not racing). My son is 16 years old and his story is very similar to many I read on your blog. I have normal aortic size, mildly dilated aortic sinus (39 cm), and trace aortic regurg. If echo shows a normal size, thats probably okay. This was caused by an aneurysm in the ascending aorta (root) that measured over 6 centimeters). Dear Dr. Creswell, Running it is important for me but if it has a problematic effect , I would opt for power walking I have regular checks, 12 to 18 months, and until about 3 years ago was told that it was hard to tell that Id had a replacement valve, it now shows slight stiffening. I dont have any ayptoms. I have no symptoms that I would notice, e.g. Theo Wargo/Getty. It has served me well enabling me to live the vigorous, full, complete life you are all so familiar with. In practice, the indications for aortic valve replacement for severe aortic stenosis or severe aortic regurgitation are straightforward and uncontroversial. Regards Is this true that you wont be symptomatic with only mild AR? I am 38 and very active (running, cycling, strength training etc). My questions are: Over time, there will be some patients who develop problems with the prosthetic heart valve or enlargement of some portion of the aorta (that hasnt already been replaced) that requires operation. Average STS score was 1.7%. (bicuspid aortic valve), singer Bret Michaels (atrial septal defect), and even 'Survivor' contestant Whitney Duncan (ASD). my age is 20 right now Okay, thats greatbut I left feeling uncomfortable with the diagnosis. I cant wait to be back, completely rested with my heart recharged, my passion for the work ahead purposeful and my joy at lifes pleasures high," the statement continued. Ad Choices, Blood molecules as they exit the left ventricle: I'll be back., The 42 Best Romantic Comedies of All Time, The 25 Best Shows on Netflix to Watch Right Now. Some information about myself: Im 28, 186 cm, 77 kg, max pulse 194, rest 50 bpm, live in Russia. I cant imagine life without CrossFit, but I wont be able to continue will I? "Schwarzenegger's pulmonic valve was successfully replaced.". We saw cardio in April again and my sons symptoms are the same and no progression on the aortic regurgitation. You are correct that we worry about the influence of such activities on the enlarged aorta in those with BAV. After a 6 month ramp up, will the Porcene valve take the stress of the 5 rep sets? Those figures are funny to me because before I was doing three or four times more intense training beside my job (air force pilot). For his second operation, Arnold Schwarzenegger, who was 70 years old at the time of this operation, had a pulmonary valve replacement procedure performed at Cedars-Sinai Medical Center in Los Angeles, California. "I feel fantastic and have already been walking the streets of Cleveland enjoying your amazing statues. Thank you so much! Can you tell me what is to much, are push ups or pull ups heavy lifting, is 3 time per week 5 km running with 10-12 km/h pace to much? "I have heart disease, and I found out about five or four years ago, the singer, now 49, told PEOPLE in 2008. From afar, its hard to know what might be responsible for your symptoms. Dont see why HIIT should be excluded. To revist this article, visit My Profile, then View saved stories. While she ended up being okay, she advised other women to be more cautious. I used to do HIIT and moderate to heavy weight 5 days a week before my physical complications. Interesting situation Sean Miller. Search Heart Hospitals The aortic valve allows oxygen-rich blood to flow from the heart to the aorta. "Women are the natural caregivers; we take care of everyone else under the sun," she says. All rights reserved. I am perfectly happy to stick to the 10km max distance for races, but my key concern is that if I do run some faster training sessions then I might have a sudden death. Most patients (like me), however, start to experience problems during their 30s, 40s, and 50s. No stenosis or regurgitation, aorta 27 mm at the time. Arnold Schwarzenegger was born with a bicuspid aortic valve, in which the aortic valve has only two leaflets, instead of the typical three. The issues related to repeat aortic valve surgery, with or without replacement of the aorta, are complicated. I appreciate your input. O'Donnell suffered a heart attack in 2012, and wrote about her experience on her blog. Tetyana. This international evidence-based nomenclature and classification consensus document is intended for universal use by clinicians, imaging specialists . All Rights Reserved. My son is a very active and healthy 14 year old. Does the BAV with aortic dilatation and small leakage prevent the blood to flow less efficiently? I otherwise feel very healthy, other than (I think) normal slowing down that comes with age. Prescriptions for safe exercise will need to be carefully tailored to your particulars. March 6, 2023, Erin Feaker For many patients, I recommend no heavy lifting (>10 pounds) for the first month after conventional heart surgery. One doctor to told me just to control it and train as I like but the other one said that with those hearts parameters I will have only 1-2% to have operation in the future but if I will continue to do triathlon for sure I will have to have one. My Echo Stress Test is normal but when I finish obviously the pressure is higher (190-80 at the end) . He was very talented at football. I like to thank you in advance for reviewing my question and also, thank you for such a great blog. Hamilton mother of twins, Cherie was diagnosed with bicuspid aortic valve disease (BAVD), a disease where the valve has only two leaflets. Yes, as the patient grows, so will the aorta.and eventually you get to the traditional >40 mm cutoff where activity restrictions are advised. They all underwent aortic valve replacement. Good to hear that youre doing well. They dont know they have it [It] leaks blood. Is a CT or MRI absolutely necessary for measuring the aortic diameter? The most common type was type 1 (1 raphe with the raphe positioned between the right and left coronary sinuses (75%), while the second most common type was also type 1 . September 13, 2017 1:00 PM. The free weights are about 10kg and Im not doing any really heavy weights. Finally, athletes are not spared. I do think that aspects of the martial arts are strength-related. Our only tool to keep track of aortic enlargement is repeated measurements with CT or echo. The CVTI was created under the leadership of Dr. Vaughn Starnes, chair of the Department of Cardiothoracic Surgery and surgeon-in-chief at the Keck Medicine of USC. Last week, the CBS This Morning anchor announced via his co-anchors Gayle King and Norah ODonnell that he would be taking a break from the show to undergo heart surgery. http://www.24hourgym.us. His story is typical. I see my cardiologist the end of May. Keep us posted! As youve mentioned, sometimes it can be useful to visit a cardiologist who has an interest in athletes and their heart problems. I suspect it had been leaking for a long time, as I felt no different; however, my recovery from long runs took longer than in the past (old age?). There was only a 0.2 cm increase in the previous 7 years (so from age 21 to 28). Hi Larry, BAV only has mild regurgitation. Its also clear-cut that patients with significant enlargement of the aorta to greater than 5.0 cm need operation for replacement of the aorta. Went through the process of antibiotic therapy and. A HR limit of 120 will be tough, I would guess. Is that so, or can it be measured by the echocardiogram as well? Does lifting weights up to 100 pounds and being cleared for push-ups, pull-ups, all cardio, etc., sound reasonable? This is the way I can help. ", Braxton is a survivor of pericarditis, an inflammation of the sac surrounding the heart. "I had many of them, but I thought, 'Nah.' , Bicuspid Aortic Valve Disease, Acquired Valve Disease. Anyway, I will continue with running as much as I can, and now I have an excuse for my lousy performance. I agree that your doctor(s) are in the best position to offer advice regarding safe exercise based upon your particular circumstances. My cardiologist (whom I trust) said to keep working out like I always have (good news for me). Left ventricle (LV diastolic diameter 54mm|58mm, LV diastolic volume 142ml|167ml, LV systolic volume 39ml|57ml, Ejection fraction 72%|65%); My average weekly training plan includes 50k of running (5 days) with 80% done on pulse below 154-152 and only 20% done at pulse about 175-179 bpm. The abnormal anatomy of the bicuspid aortic valve is complex, and a classification schema of 3 anatomical types has been proposed by Sievers and Schmidtke. Since Im not close to good medical care, are their specific things that I will start to notice if my heart valve is causing a problem? Athletes in this circumstance should collect opinions from their doctor(s) and make very careful considerations before returning to exercise. Im a 29yo CrossFit addicted man who just found out I have BAV while applying for the defence force here in Australia. A normal aortic valve looks like the Mercedes logo, a circle broken up by three lines that meet in the middle. There have been reports of lingering effects (decreased function of the left or right ventricles) for several days after marathon runs. She said it could still be 6 months to a year just depending on if there are any more changes to this next echo. Almost 15 years ago skilled surgeons replaced my aorta valve with a new replacement valve. thanks for sharing all this interesting info. I was to the understanding that the aneurysms caused in bav patients was due to the problematic bav valve causing uneven blood flow to cause uneven pressure on the aorta. Yes, there are certainly patients with BAV who never need operation. So, my question then is really, what should I look out for? Athletes will ask when they can return to their sports. Also I seemed to get quite sweaty the following hours after a hard training session. Fox News anchor Bret Baier has a . when I discussed this with my Dr. he reassured me that its not my heart causing it. Lastly, Id say that BAV alonewithout leakage or narrowing of the aortic valve, and without enlargement of the nearby aortawould not preclude sports activities of any sort. It prevents the blood from flowing back from the aorta into the heart when the pumping chamber relaxes. He is football player and he has training 5 times per week (for about 1,5 hours each). To save nice heart the best would be doing nothing (! To much info to much detail so much information and advice. At 4.0 cm, its important to be thoughtful about activities. Normal great vessel size Your site has been helpful in provided a sense of peacebut an extra insight would be super encouraging. Robbie Benson - Actor/Director - Bicuspid Aortic Valve. Im less certain about how BAV, coarctation, and history of VSD repair might impact ones current top-end performance. This is such an interesting blog, I wish I had known of it sooner. Im 37 years old male, live in Croatia, 191 cm, 94 kg, very athletic, practicing various sports my whole lifetime. Bicuspid Aortic Valve with trivial AR. Down side: must take blood thinners to prevent blood clots from forming on mechanical valve. Bicuspid aortic valve (BAV) is the most common form of congenital aortic valve disease, in which the valve has only two leaflets instead of the usual three; it affects up to 2% of the population. I probably get more inquiries from athletes with bicuspid aortic valve (BAV) than any other single heart problem. I have also spoken with Boston Childrens Hospital who have been very helpful and enlightening. Only your cardiologist and heart surgeon will be in a position to make those considerations. He wasnt real worried about me and I have regurgitation (mild) and (mild) aortic root dilation.. Do u think it would be OK to lift weights and if so maybe u could give me a better understanding. A bicuspid aortic valve only has two of these leaflets. I dont believe this has been well studied. Arnold Schwarzenegger Helped Greta Thunberg Get a Tesla, Where to Watch the Biggest 2023 Awards Contenders. During the Ross Procedure, the aortic valve is removed. Look forward to your reply and thanks for your time. Obviously, mild to moderate would be somewhere in between. Still no stenosis or regurgitation, aorta now 35 mm, he is 6 ft, 150 pounds. All severe aortic stenosis patients who are experiencing symptoms should ask for a TAVR evaluation. Contact Editor. I did cardio training 3 times a week and weight training twice a week for 60 years. He has been restricted from playing contact sports since hey was 10. 5 months ago was diagnosed with severe AR and 5 cm long aneurism (root 3.0 cm, sinusi valsave 4.3cm, ST 3.6cm, ascending aorta 3.6cm) on regular yearly checkout, with no syptoms. Specifically, Im wondering about inversions like forearm stand, head stand, and hand stand. Index to blog posts and online articles, Filed Under: Heart problems Tagged With: aorta, aortic aneurysm, arotic valve, bicuspid aortic valve, congenital heart disease, heart, heart surgery. I got Edwards magna perimount 25mm bovine AV and Valsava graft for aortic root replacement. For example, are there data that shows what happens to aortic diameters once sports have been stopped? I was running 9 to 10 minute miles. Only two cusps, commissures and sinuses are seen in the less common "pure" bicuspid aortic valve subtype. 2 Such features need to be considered before surgical intervention. Dr. Creswell Although bicuspid . Im not looking forward competitions nor marathons. To quickly review, individuals with BAV have an aortic valve with 2 unequalinstead of the usual 3 equal sizedleaflets. These techniques are most applicable to situations in which there is regurgitation, rather than stenosis, of the valve and when there is also enlargement of the aorta. Aortic dissection, a tear in the wall of the aorta. I continued playing hockey routinely until I was in my late twenties. Some good points there, Craig. I have ramped up my walking to 30 minutes, keeping my heart rate under 100 bpm. Max Page - Child Actor (Darth Vader in VW Superbowl ad) - Tetralogy of Fallot. No LA, RA, RV, chamber dilation You can contact me on zdenkokosutic@yahoo.com. I get sporatic tingling in my left hand and footand every so often in my left cheek bone. I do think that this condition can weigh heavily on patients minds, though, and in your case perhaps particularly so because of the experience of your mother. Bicuspid aortic valve (having only two leaflets rather than the normal three) happens in about 1% to 2% of the population and is more common among men. Garth was already familiar with heart diease before her diagnosis because it runs in her family. Perhaps that info will give you some basis for discussion with your cardiologist and surgeon regarding the type of valve that is used for your re-replacement. EKG and echocardiogram were done showing BAVD. In late March, Schwarzenegger was heavily involved in a chess tournament with his donkey Lulu. OPTIMUM HEALTH, INC I have 5 children, so I dont want to drop dead and leave my poor wife with them all to look after on her own. As I mentioned in previous comment my recovery is going great. My heart rate some time is 100. Last week I visited a doctor and here are the changes for the last year (before|after): Ive been affected by heart disease practically my whole life, she said. The doctor said it wasnt serious, but that I should keep watch on it every year. A CT scan made the diagnosis. On Ocotber 23, 2020, we learned that Arnold Schwarzenegger had a third heart valve procedure, a re-replacement of his aortic valve replacement. This almost seems like an off the shelf answer and Id therefore be really keen to find out your thoughts? Beta blockers are frequently prescribed in the circumstance you describe, but in truth we dont know if they will be effective in delaying surgery for any given patient. The issues of when, how, what sports are safe, etc. I am followed every 2 years. Although bicuspid aortic valves can occur . My resting HR is 60-70 BP 110-70, according to doctors have no tissue problems, never had hypertension and was told that I was born with weak threskupid valve. Im not sure how you should best sort out the differing recommendations from your doctors. Always best to heed the advice of your doctor(s) who will be in the best position to offer advice about safe forms of exercise. And of course the problem occurs in everyday, recreational athletes, too. Just still unsure however if my bioprosthetic valve affects my cross country running times. Guidelines specifically for athletes come from the Proceedings of the 36th Bethesda Conference in 2005. Im due to have an exercise tolerance test soon, but from my dealings so far Ive lost faith in the level of competence of my current cardiologist. Sounds like youre on the right track by getting things evaluated. I just need to know if these sports are a possibility (im pretty sure football is a no given its contact nature). Current guidelines suggest no restrictions on activity for athletes with BAV who have no stenosis/regurgitation and who have a normal sized aorta. This has caused a Thoracic aortic aneurysm that is 4.3 cm. It's the most common type of congenital heart disease (heart defect that's present at birth) and often goes unnoticed until later in life. If I had to choose a valve for AVR, Id choose a tissue valve. This is ridiculous. His cardiologist said, i am sure he can play a full game with new issues but I have to go with new guidelines and indirectly left it up to me to make the decision which moved him to mild /moderate and put right at the Borderline. However my Sinus of valsalva is dilated between 45-47mm (depending on the machine used). If so, how quickly? We were to see them in 3 months. I have no proof this may be causing my less than stellar performance or if perhaps I should have more patience. 140 miles at race pace. celebrities including musicians, actors, TV personalities, politicians, entertainers, and sports figures, etc. Im a 57 year old male who had aorta repair and porcine valve surgery 3 years ago. there was a tiny strand of tissue on the septal aspect of the muscular LOVT (LCOT Vmax 2.1m/sec;20mmHg peak gradient. Thank you very much for your answer. In 1997, he underwent surgery for a replacement valve made of his own pulmonic valve, which itself was replaced with a donor's. It will probably take a visit with a surgeon (who has all of the pertinent details) to outline the possibilities for you. I take bisoprolol (low dose) and my pressure is currently normal . Less 100mmhg. Thanks for sharing an update. I used to do quite some running 10 years ago (still at amateur level), I was doing lots of 10k and 20k and even I managed a marathon in 3h:26min (but at that time I didnt know about the BAV). No information provided by Baldwin Publishing, Inc. in any article is a substitute for medical advice or treatment for any medical condition. All they said is dont really do weight where you can feel the strain in your neck ?!? I used to be very muscular prior surgery and 3 mounts ago I started with 5 km runs, push ups and pull ups 3 days a week, slowly progressing. Are there any things I can do now to help minimize my risk? Very often, the specialists office will make note of the patients problem and make appropriate decisions about whether routine or urgent appointment scheduling is needed. There is very little scientific evidence to guide us here. I am concerned about removing the coronary arteries and re attaching them again etc. This might reasonably translate into some measurable improvement related to physical exercise. Mild degrees of aortic regurgitation are usually well-tolerated and do not produce symptoms. Health eCooking is a registered trademark of Baldwin Publishing, Inc. Cook eKitchen is a designated trademark of Baldwin Publishing, Inc. Any duplication or distribution of the information contained herein without the express approval of Baldwin Publishing, Inc. is strictly prohibited. Anyway, his aorta was growing at a rate of 2 mm per year (he was growing faster:).and they put him on 100 mg Losartan. I had an exercise tolerance test recently and they seemed happy with my results so fingers crossed thats a good indication I can carry on training hard! I knew none of this until a year ago. That said I have a resting HR of ~40 (always have). Have you considered meeting with a heart surgeon to talk about the situation? I was shocked. Who Qualifies for TAVR. This is the only measurement that has gone down . Aortic valve replacement is recommended for nearly all patients with severe valve stenosis (valve opening less than 1.0 cm2), Aortic valve replacement is recommended for patients with severe valve regurgitation if there are symptoms due to the regurgitation (eg, shortness of breath with exertion) or evidence that the heart is suffering because of the regurgitation (enlargement of the left ventricle), Repair or replacement of the beginning portion of the aorta is recommended if there is enlargement of the aorta to greater than 5.0 cm. When he was 7 we noticed his heart racing at age 11 his bicuspid aortic valve was diagnosed We have been told his valve is at the top of the normal size chart. Thoracic aortic aneurysm, an abnormal bulge in the part of the aorta located in the . Sory but I dont speak very vell english. That said, the recommendations dont address WHEN that screening should occur. He is on meds to slow it down. There are several variations of this procedure that are applicable in specific situations. My problem is a perpetual fear and worry about having this diagnosis and having to someday undergo open heart surgery. The risk of BAV in children of parents with BAV is probably about 10%. Patients with BAV who have a normal size aorta, with no stenosis or regurgitation of the aortic valve, can participate in sports without restriction. Youll need to rely on your doctors for advice about your condition. For athletes with mechanical heart valves, the most important consideration is usually about potential bodily injury while taking blood thinning medications. I cant do that justice here. Finding this site is such a relief / source of hope for me thanks so much Dr. Larry!.

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